Susie has an intellectual disability and behaviour problems and has been neglected by the system. Postings will include her history and her current situation, the politics involved and lack of services for her. Please tell us your horror stories about people with ID and BP. We would like to showcase how bad this problem is and how ordinary people at a grassroots level are unhappy with the way our most vulnerable people are treated. Use hounddoog@hotmail.com to submit you story to this blog.

Wednesday, December 22, 2010

Katrina

Just called me to assure me that Sue's needs are being met, that the fact there is no nurse is based on evidence of her needing less IMIs. She also said that it is an expensive thing to fund a nurse to sit there for 12hours if it is not needed. Granted it is, but what if it is needed? Oh well, can't move a mountain I guess. And by retracting funding it is evidence that it is a numbers game it's not about staff safety or clients needs.

She told me that the Senior Practitioner and the Practice Nursing Leader of ADHC(Karen) both agree that a nurse is not needed.

She told me that they are looking into sound proofing the house. That they took my point about her making lots of noise very seriously and that she agrees with me that it would be best if it is done prior to Sue moving in. Thank goodness. I could not work out how you could do it after.

Also they are going to plant some established trees out front for more privacy in case Sue does her nude dashes.

I have doubts very big doubts about this move.

She also agrees with me that Sue needs to be told who the staff are as soon as they start buddying up with her. So sensible. That honesty is the best policy. Yep it sure is.

But I cannot shake the feeling that Sue is being moved while her funding is still in jeopardy. And this kinds of proves it. "yes Julie her funding is all signed off on.” 6 days later “Oh we lost the funding for the nurse." Which is it CJP finalised and signed off on or still in negotiation stage.


I NEED COFFEE

ok mods

the glass been removed, the fence isn't seen really as a problem. Not sure if the house is sound proofed. Curtains are still up. I suggested roller shutters.

Stupid CJP Stupid

ok where to start

CJP just rang me. They have decided not to tell Sue who the staff are that are going to be going up and training with her. Katelynd told me that Janine and Ellie told her it would be best not to tell Sue who they are until 1-2 weeks before Sue moves.

I told Katelynd it is not good to lie to Sue. She said they aren't lying to her. I said Oh yes you are. And as these staff are going to work with Sue at the new house you are setting it up so she cannot trust them. You CANNOT LIE TO HER. Idiots, how many times does such a simple statement have to be said. Sue reacts very well to honesty, she never forgives anyone who lies to her.

Also they have lost funding for the Registered nurse. So I guess when they told me at the meeting on the 16th that all funding was signed off on that was also a lie. No nurse means Sue cannot have IMI when needed. Ok so she needs them less that say a year ago but the average is 2 a month in her stable home. Her move will escalate her violence especially because she has been lied to about the staff. The CJP is STUPIDTY in motion, go on try to convince me that Sue isn't being moved purely because she is a number, a body to fill the empty space.

Meeting

The ad been placed for staff. All the funding has been signed off one. They have also taken funding from another house and redone it so it can come to Sue.

They still have no plan for if this move fails. Staff are going to go up and buddy up with Sue's staff and work directly with her as part od her staff training. I told them that Sue should be told about the move then because it will rather hard to hide it from her. And she doesn't react well to people lying to her.

They are thinking of doing the day programs in house at the start, the providor is Sunshine Homes.

We'll see how it goes.

Wednesday, December 15, 2010

No email yet from Katelynd. And isn't it great that I'm doing their job by finding out where the mods are up to. Just fantastic commmitment to the job.

Good afternoon Jules,

Katelyn will send you a quick follow-up email shortly letting you know
the progress on the various listed issues.

Heihana is the building project officer he said to give him a call to
talk about the progress with the modifications his no is
*********.Katelynd also has an extensive up date to give you on the
building, the Staff recruitment with Lifestyles ect.

Are you right for transport tomorrow to come into Parramatta, let me
know if you require a lift.Looking forward to our meeting tomorrow as
lots of progress has been made on Sue's placement.

Cheers Katrina

Tuesday, December 14, 2010

here we go again

ECT.

had a phone call with Sue Dr today. Dr Chenoworth has suggested that Sue have some more ECT.

No Sue is not depressed, she is eating, talking, doing her activities. So why did it get raised, because she is doing some facial twitches and hand movements.

She has been doing them for about 6 months now.

it is clear to me it's an anxiety reaction. Especially because she is very functional at the moment. She is not slipping into one of her depressions.

Now in May Sue space was converted to house a new client. Sue has spoken to me a lot about her concerns about this and how she'd cope. It was around this time that I noticed the hand movements. Since then they have increased to include the facial ones as well. Anxiety.
So I pointed this out to Eric and he said: "Hadn't thought of that. I think you're right." Great.

Ok so I spoke to Sue's psych at Kanangra about this being an anxiety reaction because of the new woman moving into Sue's unit and she also said: "Hadn't thought of that. Thought it was anxiety but wasn't sure what could have triggered it." I also suggested CBT (cognitive brain training) to help Sue cope and she said she was talking to someone else about that for Sue. So at least I'm on the right track

Now I need to ring Chenoworth.

I don't mean to sound critical, I understand that everyone is concerned about Sue and the movements because last time they were the herald of her slipping into her depression. But please look at all sides of the coin before you jump to ECT. Look at changes in her environment Sue doesn't cope well with change and she had a big change in her living arrangements.

it's a bit much to be thinking of giving someone ECT because they have a stress reaction.

2nd visit house part 2

in some ways it was a pointless exercise. Nothing has been fixed/modified. The easy access into the property has not been secured. it needs to be as people can jump the fence to get into the property.

I think they forget it's not just about making sure the clients can't get out, it's also about he public not being able to get in. And they are as the property is being tagged, which doesn't bother me, but it does bother me that access is so easy onto the site. And even after having it pointed out to them it has not be fixed. It isn't hard it just needs some lattice work or something like that attached to the fence and then up under the eaves of the last unit.

Also ADHC/CJP still do not have a formal plan on what to do if this placement does not work out for Sue. Both the guardian and I are very concerned about this.

I also told Katelynd that I have real concerns about Sue accessing her day programs in the community. That she is being opened up to her being charged with assault. I get the real impression that they think they can change Sue's behaviour. That they can get her to not get angry. Good luck with that one. Because they say things like, if she hits someone, if that occurs. I'm telling you people it will occur.

And then when I get them to admit that they say stuff like "the only reason she doesn't get charged at Kanangra is because the staff choose not to." That's right. But Sue is access the community where those options are not in place. ADHC do not listen to what people say in the consultation process, and it will be Sue that will be punished for their arrogance. So I told Katelynd that if Sue ends up in front of a judge and goes to jail because she has been charged with assault then all hell will break lose.

Also ADHC still are trying to push that Sue does not have staff after 8pm. It's crap she has staff 24/7. Also they can see into Sue's space at all times. They cannot in the new house.

ADHC bad communticators

still waiting for the phone call from Katrina (email 29.11.2010)

"Good morning Julie just back from leave, I will ring you today to
organise a catch up this week. The service provider Life Styles has been
signed off (that is the contract). That great news for us and Sue.

Will talk today.

Cheers Katrina"