Next Step

Sue has moved up a step in her progress she has moved into a ward, she is happier for now as she is with other people other than staff. It had to be that way until her behaviour had settled enough to trust that she would not harm others. So far so good. She had stopped talking to me for about three months prior to her moving. When I spoke with her about it she said she had no memeory of it, which is unualsul. Usaully she say, “yeah I was mad at you for not fixing it.” She’s over what ever it was and is now teasing me and cracking jokes.

She has also been recently diagnosed with terminal 22q13 deletion syndrome, as has her daughter. Actually it was her daughter being diagnosed that resulted in me contacting her doctor to have Sue tested. I had never heard of this condition before. I am wondering if this deletion is why every so often Sue goes silent and her toileting skills stop.
http://www.22q13.org/home.html

For now though she is happy, more pieces to her puzzle are falling into to place wiht each new diagnoses, which means her treatment and needs will be meet better. For now wher she is is wonderful, they are great.