Susie has an intellectual disability and behaviour problems and has been neglected by the system. Postings will include her history and her current situation, the politics involved and lack of services for her. Please tell us your horror stories about people with ID and BP. We would like to showcase how bad this problem is and how ordinary people at a grassroots level are unhappy with the way our most vulnerable people are treated. Use hounddoog@hotmail.com to submit you story to this blog.

Wednesday, August 03, 2011

my reply to Kelly

Hi Kelly

Your reason for why I was not contacted about the recent changes in Sue's plan are unacceptable. If your firm tells everyone else involved about the Psychiatrist not wanting to consult with Sue then in reality I should have been informed at the same time because if I find out from elsewhere it only causes more problems. Does your firm not see that as being rude and just adding to the issue of bad family communication further. Regardless of what the CJP say you DO NOT keep family informed. Actions speak louder than words and your actions clearly show a lack of keeping family informed. First the RN, now the Psychiatrist, who else has decided not to work with Sue?

I expect better, Sue deserves better and in a lot of ways it's better for your firm if I know what's happening. I do not like being excluded and my patience ran out a long time ago with this situation.

I still do not understand why the rush to move her after all Kanangra is not due to close until 30th June 2018 and while ever Morisset Hospital is open so is Kanangra (Stronger Together pg 24-25)

I really think you should leave Sue where she is. She has everything she needs on site and clearly the industry outside of Kanangra do not feel they can deal with Sue and her very complex needs. All the talk of research and appropriate training don’t seem to have a clear result at all, and instead the work has been farmed out on contract.

If CJP do decide to move her then you should at least move her under the temporary leave move policy so that if/when it all falls apart she has a spot she can go back to at Kanangra.

As of yet I have not heard of any clear direction the CJP have except the “we'll make it work” line which doesn’t seem to be in line with the academic research and training line touted at meetings. So far this move is not working for Sue. You have to start seeing Sue as a person and not a case file to fill a vacancy and funding/political volleyball.

Julie

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