Susie has an intellectual disability and behaviour problems and has been neglected by the system. Postings will include her history and her current situation, the politics involved and lack of services for her. Please tell us your horror stories about people with ID and BP. We would like to showcase how bad this problem is and how ordinary people at a grassroots level are unhappy with the way our most vulnerable people are treated. Use hounddoog@hotmail.com to submit you story to this blog.

Wednesday, August 31, 2011

ADHC compliant

ok, the head of ADHC is organising a meeting time with me. Hopefully we'll get some answers. She is really good and was instrumental is getting Sue placed at Kanangra.

Tuesday, August 30, 2011

ADHC complaint response form ADHC

ADHC fowarded on my complain to Kanangra. Bad move, very bad move, Kanangra are wonderful and I will not let them get caught up in the complaint about the CJP.

So this is my reply back to ADHC

"First of all this is highly inappropriate because my complaint is not with Kanangra it is with the CJP and two workers at the CJP. Secondly it is a great delaying tactic to refer it onto someone not involved in the complaint.

So I have told Kanangra to reply back to ADHC saying that I have refused to meet with Kanangra and the CJP to discus how to communicate better with me as that avenue has already been explored before that that is why the complaint was submitted.

Secondly I said they should let ADHC know that I think it is highly inappropriate to contact Kanangra because my complaint is not with Kanangra it is with the CJP and two workers at the CJP. I have no issue or complaint with Kanangra or their staff or their communication with me. Kanangra staff are wonderful and Kanangra has been the best placement Sue has ever had."


It almost feels like the CJP are trying to cause a rift between Kanangra staff and myself by referring the complaint to them.

So I am going to add this to my complaint with the ombudsmen that the CJP inappropriatly referred this complaint to Kanangra.


Not only are CJP no good at keeping family informed they clearly can't read either for the complaint to end up at Kanangra.



Monday, August 29, 2011

Commonwealth Ombudsman’s office

Our ref: 2011-115685
Dear Ms Patterson
Thank you for your email of 25 August 2011 in which you complain about the Department of Ageing, Disability and Home Care (ADHC).

We cannot help you with this matter. The Commonwealth Ombudsman’s office investigates complaints about the actions of Australian Government agencies (that is, ‘Federal’ or ‘Commonwealth’ Government agencies). As ADHC is a state government agency, we cannot investigate your complaint.

The NSW Ombudsman can investigate some complaints about ADHC. You might want to contact them to see if they can help.

Yours sincerely

Thursday, August 25, 2011

ADHC compliant

Dear Ms Patterson,

The Hon Andrew Constance, Minister for Ageing and Minister for Disability Services, has asked me to acknowledge receipt of your email.

A response will be sent in due course.

Office of the Hon Andrew Constance MP

Minister for Ageing

Minister for Disability Services

ADHC compliant

Ok so seeing ADHC complaints department have not repleid to me I have taken the next step. Below is an email i sent to the Ombudsmen, The Hon. Andrew James CONSTANCE, MP
Minister for Ageing, and Minister for Disability Services and The Hon. Barbara Mazzel PERRY, BA, LLB MP Shadow Minister for Disability Services. Why not just answer my emails, why ignore someone it makes no sense to be this rude and incompetent or does it just come down to plain old arrogance.

"Hello,

I have lodged a complaint with ADHC (Ageing, Disability and Home Care) about the CJP (Community Justice Program) Parramatta office on the 11.8.2011. I have not heard back from them.

The initial complaint about CJP was about why the workers assigned to my sister case (Sue Patterson) do not reply to my emails, why I seem to be excluded from very important updates to her situation (such as workers refusing to work with her) and why I have not been receiving my weekly updates. The CJP talk about making sure family are kept informed of what is going on but in reality it is merely lip service.

Now I want to know why ADHC has ignored that complaint.

Now that this has got to the point of me sending a complaint to the Ombudsmen I would like an investigation as to why the CJP are moving Sue at all. They tell me it is because she is on their books but in reality should she still be? She has served her sentence, she has housing, she is settled. They tell me it is because she is one of their clients but in their own mandate they state that: “This program is funded by the NSW Government for the provision of accommodation and support services for people with intellectual disability exiting the criminal justice system. Clients exiting correctional centres undergo a comprehensive assessment to determine the level of support required by the person. Etc.”

My sister is not exiting prison, she has been out of prison since 2004 I think, so how long will she be treated like an offender? As you can see CJP is meant to deal with people exiting prison, she is not. The CJP should be helping people who need a placement, especially if their parole depends on suitable housing. Sue served a much longer sentence than originally handed down to her simply because there was no housing for her and DADHC were refusing services at that stage. It was my partner and myself who fought for Sues accommodation.

Sue has housing now, furthermore it meets all of her very complex needs. The housing that the CJP are offering does not, clearly, as they are having problems finding staff able to cope with Sue's very high and complex needs. Sue has had seven previous DAHDC housing models that have failed.

Kanangra where she currently is has everything that Sue needs and is not scheduled to close until 2018 and will never close while Morisset hospital is open so why the rush to move her?

Thanking You

Julie Patterson"

Tuesday, August 23, 2011

Discrimination

A friend just pointed out something to me.

Sue has served her time, she is no longer on parole, so why are the CJP treating her like a criminal. If she did not have a disability then she would not be in this situation.

She in not a criminal, she has served her time, the CJP is for "This program is funded by the NSW Government for the provision of accommodation and support services for people with intellectual disability exiting the criminal justice system.

Clients exiting correctional centres undergo a comprehensive assessment to determine the level of support required by the person. Support may range from specific consultations or interventions to intensive accommodation support. Specialist assessment and support is provided by clinical and case work staff. A range of accommodation options is available, from intensive group home support to drop-in models.

The program aims to reduce the incidence and impact of offending behaviour by people with an intellectual disability."

She is not exiting jail she has been out for 7 years. So leave her alone and help the people who are leaving jail.


Thursday, August 11, 2011

Ignorance is not bliss

Complaint:


CJP wants to move my sister Sue from Kanangra to Montrose. This complaint is about their lack of communication with me as Sue's advocate and family. Example: I was the only person not told that Dr Kavarah, the psychiatrist, refused to work with Sue. Also i was not told that the RN had been removed from the plan that was orignally proposed to me.

And even though I am supposed to get weekly updates this information about staffing was not told to me by the CJP. I found out from other sources and when I emailed CJP about how these issues are going to be addressed they igonre me unless I lose my temper.

The main point is if they kept me informed on everything I would not have found out from other sources and this would never have got to complaint stage.

Sue does not know about the move yet so it wouldn't be a good idea to mention it to her.

I want from CJP, and in relation to this complaint, everything via email because I believe we all need to be accountable.

Thank you

Tuesday, August 09, 2011

latest email to CJP

Hi

I'm wondering how you are going to deal with Sue's lack of hygiene when she moves. I know I have said before that she will not use a shower properly. That she does not care if she smells, Kelly you have first hand experience on this. But her space only has a shower.

In Sue's lastest ISP they say they use a "Daily plunge bathing for personal hygiene and relaxation"(pg 6 Health care section).

How are you going to manange this very important issue.

Julie

Friday, August 05, 2011

weekley updates

haven't had one since the 6th July 2011. Bad, very bad, cause i reckon lots is happening.

Email to Kelly

Hi Kelly
I haven't had a weekly update in a while. Can you catch me up in regards to Sue's move and her service providers, Dr's, psychs etc.

Julie

Wednesday, August 03, 2011

my reply to Kelly

Hi Kelly

Your reason for why I was not contacted about the recent changes in Sue's plan are unacceptable. If your firm tells everyone else involved about the Psychiatrist not wanting to consult with Sue then in reality I should have been informed at the same time because if I find out from elsewhere it only causes more problems. Does your firm not see that as being rude and just adding to the issue of bad family communication further. Regardless of what the CJP say you DO NOT keep family informed. Actions speak louder than words and your actions clearly show a lack of keeping family informed. First the RN, now the Psychiatrist, who else has decided not to work with Sue?

I expect better, Sue deserves better and in a lot of ways it's better for your firm if I know what's happening. I do not like being excluded and my patience ran out a long time ago with this situation.

I still do not understand why the rush to move her after all Kanangra is not due to close until 30th June 2018 and while ever Morisset Hospital is open so is Kanangra (Stronger Together pg 24-25)

I really think you should leave Sue where she is. She has everything she needs on site and clearly the industry outside of Kanangra do not feel they can deal with Sue and her very complex needs. All the talk of research and appropriate training don’t seem to have a clear result at all, and instead the work has been farmed out on contract.

If CJP do decide to move her then you should at least move her under the temporary leave move policy so that if/when it all falls apart she has a spot she can go back to at Kanangra.

As of yet I have not heard of any clear direction the CJP have except the “we'll make it work” line which doesn’t seem to be in line with the academic research and training line touted at meetings. So far this move is not working for Sue. You have to start seeing Sue as a person and not a case file to fill a vacancy and funding/political volleyball.

Julie

CJPs reply

Hi Julie,
unfortunately I haven’t had a chance to get to my emails the past couple of days until now.

Your correct Dr Kavarah has declined to see Sue when she moves, we were only notified of this early last week. Given she is already consulting with one of the other ladies at Montrose we were attempting to clarify why she was prepared to see one person and not the other. Unfortunately we haven’t been able to clarify this, but her office has confirmed that she will not be able to take Sue on.

Katelynd & Lifestyle Solutions are busily attempting to identify other appropriate Psychiatrists to refer to, once we have confirmed the Psychiatrist I will ensure you are informed asap. Im sorry I can not give you a specific date as we are at the mercy of the Psychiatrist.

Thanks
Kelly


Now i saw Sue on Thursday, If they could let others know why not me? They do not keep family in the loop.

Tuesday, August 02, 2011

CJP's reply

Good morning Julie,

I will have Kelly follow up on this.

Regards Katrina


So I fowarded this email onto Kelly myself, I'm making sure she gets it, tic tic tic.
My paitence is gone. tic tic tic, this is getting very old and annoying.

time for a shake up tic tic tic